News & Events |
|
Welcome to our News & Events page. Here we’ll keep you up-to-date with local National Marrow Donor Drives
and other events, plus we’ll post all the latest news from the NMDP and Carter BloodCare. Check back often.
|
| |
|
|
Maya Chamberlin, 4, needs a bone marrow transplant to treat a rare blood disease she was diagnosed with in September.
Picture and story courtesy of the Chamberlin family
Last September, 4-year-old Maya Chamberlin was diagnosed with a rare blood disease known as HLH. Her chances of survival depend on finding a suitable bone marrow donor.
Maya needs a bone marrow transplant. But so far, the family has not been able to find a match. The Chamberlin family's search for a match is more difficult because Maya is of mixed race.
"It's difficult with Maya because she comes from a mixed genetic background," her mother, Mina Chamberlin says. "I am from India, and my husband is Caucasian — German and English descent — so the combination of the two is making it more difficult to find a match."
A donor's compatibility is based on their HLA — or human leukocyte antigen — type. "And HLA is basically inherited. So the probability of finding a suitable donor is highest among people of your own race," Chamberlin says.
About 13 million potential donors are registered worldwide, but "we don't have one in that pool," Chamberlin says. She says the chances of finding a donor are "pretty low — pretty, pretty low.
"But it is not hopeless. I mean, I know there is that one person out there," she says.
"While siblings have a 25 percent probability of being a match, Maya's younger brother, Jaden, isn't one, “Chamberlin says. And finding a close match is especially important for bone marrow transplants.
Chamberlin says there's a misconception that donating bone marrow is painful and difficult. "It's performed under anesthesia, so you will absolutely not feel any pain at all from the procedure," she says. "The only pain you feel is perhaps a little bit of soreness after the procedure is over and you're awake."
"Right now, Maya is stable". "She continues to get chemo, and she will continue to get chemo until the transplant is done. She knows she's sick, but her spirits are high," Chamberlin says, choking back tears. "She's such a tough little girl."
|
| |
|
|
VINOD KUMAR (35) is a father of two, a dedicated family man and a loyal friend who has been suffering from MYELOFIBROSIS since September 2009. Doctors have tried all possible treatments but now his chance of survival depends on finding a matching marrow donor. Unfortunately his brother’s marrow didn’t match.
We are organizing a donor drive to find a potential match.
Please Join the Marrow Registry and Help Save a Life!!
Just 4 cheek swabs and you are giving a world of hope, not only for Vinod but for thousands searching for a match!!
COLLEYVILLE HERITAGE HIGH SCHOOL
5401 Heritage Avenue
Colleyville, TX
76034-5919
Date: Saturday, March 27th, 2010
Time: 5:00PM - 9:00PM
|
|
Join us to raise glasses and funds at
The House of Blues
April 22, 2010
Happy Hour
5pm-8pm
Drink Specials, Door Prizes, Networking and Fun
|
|
| |
| |
| |
|
 |
|
August, 2010
Special Patients Vinod & Alexandra
Various Sites, Locations & Times
Dallas, TX 75235
Please call Glenda Stanley – 214.351.8153
August 2, 2010
Anniversary Blood & marrow drive
SpPtAusin Douglas(GS)
Genghis Grill
11 a.m. – 8 p.m.
6600 N Freeway Ste 144
Forth Worth, TX 76137
Glenda Stanley – 214.351.8153
August 6, 2010
Tulsa Convention Health Fair
9 a.m. – 11:59 p.m.
Ford Livestock
4145 East 21st Street
Tulsa, OK 75114
Glenda Stanley – 214.351.8153
August 8, 2010
Lowe's RDC – Employee Event
7 p.m. – 12 a.m.
955 Lowe's Ln
Mt. Vernon, TX 75457
Alicia Peoples – 903.363.0409
August 8, 2010
Best Buy-Garland
Employee Event
1 p.m. – 5 p.m.
3171 N. George Bush Fwy
Garland, TX 75040
Annette Gomez - 214.351.8155
August 10, 2010
Lowes RDC-Employee Event
8 a.m. – 12 p.m.
955 Lowes Lane
Mount Vernon, TX 75457
Annette Gomez - 214.351.8155
August 12, 2010
ATI Technical
Blood and Marrow Drive
10 a.m. – 1 p.m.
6627 Maple Ave.
Dallas, TX 75235
Glenda Stanley – 214.351.8153
August 12, 2010
ATI Tech
Blood and Marrow Drive
8 a.m. – 11:59 p.m.
6627 Maple Ave
Dallas, TX 75235
Venus Thomas – 214.351.8157
August 13, 2010
TX Good Samatarian
Blood and Marrow Drive
12:30 p.m. – 4 p.m.
3901 Montecito
Denton, TX 76210
Glenda Stanley – 214.351.8153
August 14, 2010
Sigma Gamma Rho
Marrow Drive
8 a.m.
2323 Exline
Dallas, TX 75234
Venus Thomas – 214.351.8157
August 18, 2010
Longview City Health Fair- BIC
Maude Cobb Cntr
10 a.m. – 2 p.m.
100 Grand Blvd
Longview, TX 75601
Alicia Peoples – 903.363.0409
August 22, 2010
Day Spring Family Ch
Blood and Marrow Drive
10 a.m. – 2 p.m.
618 North Beltline
Irving, TX 75061
Glenda Stanley – 214.351.8153
August 22, 2010
Korean UMC Of Dallas
Blood and Marrow
9 a.m. – 3 p.m.
3800 Carbon Road
Irving, TX 75038
Annette Gomez - 214.351.8155
|
|